Toledo Dystonia Zoo Walk supports dystonia research treatment

The first Toledo Dystonia Zoo Walk will be held on October 5th to raise public awareness of dystonia.

Toledo, OH (Merxwire) – Toledo is one of 13 cities that will have a dystonia zoo walk in 2019. The Toledo Dystonia Zoo Walk will be held on October 5th to let everyone know that dystonia is a disabling and unrecognized neurological disease and supports the Dystonia Medical Research Foundation to conduct research to promote the treatment of individuals and families affected by the disease. And program progress.

The Toledo Dystonia Zoo Walk is a family-friendly event that doesn’t require intense exercise and does not have the necessary routes. Encourage everyone to spend the day at the zoo and enjoy everything that the Toledo Zoo has to offer. The zoo hopes to unite families with dystonia and invite more communities to understand dystonia and support medical research. National sponsors include Allergan, Merz and Ipsen.

Dystonia is characterized by extreme, involuntary muscle contractions that result in twisting, repetitive muscle movements and abnormal postures of the body and limbs.  Common signs include twisting or abnormal movements of the head and neck, excessive blinking, a breathy or choking voice, hand cramps, or a twisted foot. No fewer than 250,000 Americans are living with dystonia. Estimates suggest that 70% of patients are misdiagnosed prior to a dystonia diagnosis.

WHEN: Saturday, October 5, 2019. Registration opens at 8:00 AM. Event begins at 9:30 AM.

WHERE: Toledo Zoo & Aquarium, 2 Hippo Way, Toledo, OH

WHO: Kristin Cinglie of Monroe, MI is organizing the Toledo Dystonia Zoo Walk to promote greater awareness and to bring together individuals and families affected by dystonia in the local area. Cinglie was diagnosed with dystonia in 2012 after years of misdiagnosis. A chemical engineer and lifelong athlete, she began noticing severe cramping and tightness in her leg and shoulders while training for a half marathon. Today, Cinglie experiences chronic, painful muscle spasms in her neck, torso, leg, arm, and feet. She often needs a cane to walk, and experiences debilitating headaches. Cinglie  hopes the Toledo Zoo Walk may yield interest in a local dystonia support group.

The Dystonia Medical Research Foundation is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families. 

SOURCE Dystonia Medical Research Foundation

More information please visit: https://toledodystoniazoowalk.swell.gives/


Media Contact Information:

Company Name: Dystonia Medical Research Foundation
Contact Person: Jessica Feeley
Phone: +1-312-755-0198
Country: United States of America
Website: https://www.dystonia-foundation.org

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